Let me tell you a little about myself. I'm am a girl in my 20's suffering from a wide variety of health issues including:
Severe Arthritis, Psoriasis, Costochondritis, depression, Anxiety, Polycystic Ovary Disease, Hypertension and more...

As of lately I've been in constant pain, and I've wanted to just vent about it, but I didn't want to bother or scare away all of my regular followers, so I started up this blog.

I plan to talk about my physical and mental issues that I deal with on a daily basis.

There may also be some nerdiness crap sprinkled in here as well since I'm a fan of video games, webcomics, anime junk and all things nerdy.

 

Highest Dose

I got my IV this morning, and I am now at the highest possible dose of remicade. I really hope this works out for me…

so far, the only side effect I’m feeling is a little bit of a headache and just extreme exhaustion (probably from the high dose of benadryl…)  but even so, I can already feel a small improvement with my feet (they’re still crazy swollen) but walking a little bit isn’t nearly as agonizing as it had been just yesterday…

I really hope the swelling goes down more before the weekend, we had plans to go out, skating, go-carting, and general fun stuff…

needless to say, I haven’t been looking forward to this as much I should be…   :(

I hardly slept at all last night, I kept waking up due to the extreme pain in my spine and feet. I kept tossing and turning to try and get comfortable, but nothing helped…

Tomorrow’s my IV, I never imagined I’d be so happy to have a needle jammed in my arm for hours.

My feet are so swollen, my back is so sore…

I have 5 more days before my IV…

I wonder if they’re going to have to up my dose again…

what if this medicine stops working too?

what’s next?

Stress at work, and worn off medicine

So, work has been super stressful for me lately!

Currently there are no managers at the store I work at. I am supposed to be bumped up to manager this week, but I wasn’t on the scedule this week, so they’ve had me coming in on random days. (Which has been driving me insane)

I’m supposed to come in on Friday, and Friday is truck day… This is supposed to be my day to prove I’m capable of unloading a truck and stocking quickly.  With my medicine I should do fine, buuuuuuuut…

My IV is next week, and my previous one has already worn off.  :(  I’m functioning by popping ibuprofen again… I’m so screwed… So far it’s definitely hitting hard in my back, and coming back in my chest and feet too, it hasn’t hit my hips yet… as for my skin, the psoriasis is really bad on my legs, and even showing up on my nose too.  There’s no way to hide that… Ugh!

This is going to be a crappy work week.  I can’t wait for Thursday so I can get my IV!   :(

Things are looking a little up

I got my IV on monday and I have felt like 80x better than I had before!

I can now stand up without intense pain, and I can pick up my purse with little issue as well!

My skin is still a wreck though.

I don’t know if I mentioned it before, but I have sever psoriasis. it had started to go away but then came back with vengeance. my arms are still pretty clear, but my legs are covered with sores from my knees down, as well as my entire scalp. 

I’m really hoping this starts to clear up soon, I’ve got a trip to a water park, and I get so self conscious.  

I often wonder what would be worse, people thinking I’m weird for wearing leggings or something in a pool, or people thinking I’m diseased and possibly contagious (which I’m not, but people are ignorant)… or some kind of burn victim… I just don’t know…

Lets start this blog with a summary of my rough day!

Today was quite the day, I had to drive my dad to work so I could use his car (Mine broke down), then I had to go to work myself. My medicine had faded two weeks ago, so I’ve been hurting.

immediately following work, I drove to the doctors and got lost getting there. They decided to up my dose for my IV/infusion. When I got there, I was thrilled!  when you’re in this much pain you’ll gladly take a needle to the arm and sit for 4 hours.

My IV on the other hand did not last 4 hours. Apparently I am allergic to my medicine, this has happened 3 times now but we stick with it because it helps that much…  :( 

When I have an allergic reaction my heart beat shoots up and I become super flushed/hot, the first time my eye even swelled up! (they’ve pre-medicated me ever since, but I’m still getting reactions. When I get them, they have to stop my IV until I’m back to normal so that prolonged the process at the very least another hour… I feel bad for the nurse who had to sit with me, we joked that I was just trying to keep her on her toes!

As of right now, I feel like I’ve been hit by a truck, but at least its better than feeling like I’ve been hit by a train.

I hope that I’ll be able to confidently put my foot on the ground w/o anticipating pain. hopefully… 

(I apologize if this makes little sense, I’m really exhausted from all the benedril they pumped into me today…)